6th National Thalassaemia Conference& Workshops
6th National Thalassaemia Conference& Workshops 17-19 Dec 2009
Thalassaemia Federation of Pakistan in collaboration with World Health Organization organized the 6th National Thalassaemia Conference & workshops at Lahore from Dec 17-19, 2009. The conference highlighted the importance of early diagnosis, optimal […]
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ISLAM AND TERMINATION OF PREGNANCY FOR GENETIC CONDITIONS IN PAKISTAN: IMPLICATIONS FOR PAKISTANI HEALTH CARE PROVIDERS
INFORMED CHOICE IN GENETIC SCREENING FOR THALASSAEMIA DURING PREGNANCY: AUDIT FROM A NATIONAL CONFIDENTIAL INQUIRY
Authors: Darlison, Mary Petrou, John Old, Mark Layton and Lysandros Varnavides
Bernadette Modell, Rodney Harris, Beverley Lane, Maren Khan, Matthew
Abstract
Objective National audit of informed choice in antenatal screening for thalassaemia.
Design Audit from the UK Confidential Enquiry into Counselling for Genetic Disorders.
Setting Thalassaemia module of the UK Confidential Enquiry […]
IMPROVED SURVIVAL OF THALASSAEMIA MAJOR IN THE UK AND RELATION TO T2* CARDIOVASCULAR MAGNETIC RESONANCE
Authors: Bernadette Modell*1, Maren Khan1, Matthew Darlison1, Mark A Westwood2,David Ingram1 and Dudley J Pennell2
Abstract
Background: The UK Thalassaemia Register records births, deaths and selected clinical data of
patients with thalassaemia who are resident in the UK. A study of survival and causes of death […]
MIDWIVES’ PERCEPTIONS OF THEIR ROLE AS FACILITATORS OF INFORMED CHOICE IN ANTENATAL SCREENING
Authors: Shenaz Ahmed,BSc(Hons),PhD(Lecturer)a,n, LouiseD.Bryant,BSc(Hons),PhD(Lecturer)a,
Phyllis Cole,RN,RM,DPSM(PublicHealthLeadforMaternity)
A b s t r a c t
Objective: to explore midwives’perceptions oft heir role as facilitators of informed choice in antenatal
screening.
Design: qualitative.
Setting: community midwives,Yorkshire and Humberregion,UK.
Participants: community midwives offering antenatals creening(n¼15).
Method: semi-structured interviews analysed using Thematic Analysis.
Findings: to facilitate informed […]
ATTITUDES TOWARDS PRENATAL TESTING AND TERMINATION OF PREGNANCY IN BRITISH PAKISTANI PARENTS AND RELATIVES OF CHILDREN WITH RECESSIVE CONDITIONS IN THE UK
Authors: S. Ahmed1*, M. Ahmed2, S. M. Sharif2, E. Sheridan2 and G. R. Taylor3
ABSTRACT
Objective To compare British Pakistani parents’ and their relatives’ attitudes to prenatal testing (PND) and termination of pregnancy (TOP) for a range of conditions.
Method A total of 222 British Pakistani participants: […]