INFORMED CHOICE IN GENETIC SCREENING FOR THALASSAEMIA DURING PREGNANCY: AUDIT FROM A NATIONAL CONFIDENTIAL INQUIRY
Authors: Darlison, Mary Petrou, John Old, Mark Layton and Lysandros Varnavides
Bernadette Modell, Rodney Harris, Beverley Lane, Maren Khan, Matthew
Objective National audit of informed choice in antenatal screening for thalassaemia.
Design Audit from the UK Confidential Enquiry into Counselling for Genetic Disorders.
Setting Thalassaemia module of the UK Confidential Enquiry […]
IMPROVED SURVIVAL OF THALASSAEMIA MAJOR IN THE UK AND RELATION TO T2* CARDIOVASCULAR MAGNETIC RESONANCE
Authors: Bernadette Modell*1, Maren Khan1, Matthew Darlison1, Mark A Westwood2,David Ingram1 and Dudley J Pennell2
Background: The UK Thalassaemia Register records births, deaths and selected clinical data of
patients with thalassaemia who are resident in the UK. A study of survival and causes of death […]
Authors: Shenaz Ahmed,BSc(Hons),PhD(Lecturer)a,n, LouiseD.Bryant,BSc(Hons),PhD(Lecturer)a,
A b s t r a c t
Objective: to explore midwives’perceptions oft heir role as facilitators of informed choice in antenatal
Setting: community midwives,Yorkshire and Humberregion,UK.
Participants: community midwives offering antenatals creening(n¼15).
Method: semi-structured interviews analysed using Thematic Analysis.
Findings: to facilitate informed […]
ATTITUDES TOWARDS PRENATAL TESTING AND TERMINATION OF PREGNANCY IN BRITISH PAKISTANI PARENTS AND RELATIVES OF CHILDREN WITH RECESSIVE CONDITIONS IN THE UK
Authors: S. Ahmed1*, M. Ahmed2, S. M. Sharif2, E. Sheridan2 and G. R. Taylor3
Objective To compare British Pakistani parents’ and their relatives’ attitudes to prenatal testing (PND) and termination of pregnancy (TOP) for a range of conditions.
Method A total of 222 British Pakistani participants: […]
IS ADVICE INCOMPATIBLE WITH AUTONOMOUS INFORMED CHOICE? WOMENS PERCEPTIONS OF ADVICE IN THE CONTEXT OF ANTENATAL SCREENING: A QUALITATIVE STUDY
Authors: Shenaz Ahmed PhD,* Louise D. Bryant PhD,* Zahra Tizro PhD and Darren Shickle MD*
Background Patient autonomy in antenatal screening is a high priority for policy developers in many countries.
Objective This paper presents womens understandings of how health professionals should facilitate informed screening choices with an […]