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Research

Informed choice in genetic screening for thalassaemia during pregnancy: audit from a national confidential inquiry

Authors: Darlison, Mary Petrou, John Old, Mark Layton and Lysandros Varnavides Bernadette Modell, Rodney Harris, Beverley Lane, Maren Khan, Matthew Abstract Objective National audit of informed choice in antenatal screening for thalassaemia. Design Audit from the UK Confidential Enquiry into Counselling for Genetic Disorders. Setting Thalassaemia module of the UK

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Midwives’ perceptions of their role as facilitators of informed choice in antenatal screening

Authors: Shenaz Ahmed,BSc(Hons),PhD(Lecturer)a,n, LouiseD.Bryant,BSc(Hons),PhD(Lecturer)a, Phyllis Cole,RN,RM,DPSM(PublicHealthLeadforMaternity) A b s t r a c t Objective: to explore midwives’perceptions oft heir role as facilitators of informed choice in antenatal screening. Design: qualitative. Setting: community midwives,Yorkshire and Humberregion,UK. Participants: community midwives offering antenatals creening(n¼15). Method: semi-structured interviews analysed using Thematic Analysis. Findings:

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Attitudes towards prenatal testing and termination of pregnancy in British Pakistani parents and relatives of children with recessive conditions in the UK

Authors: S. Ahmed1*, M. Ahmed2, S. M. Sharif2, E. Sheridan2 and G. R. Taylor3 ABSTRACT Objective To compare British Pakistani parents’ and their relatives’ attitudes to prenatal testing (PND) and termination of pregnancy (TOP) for a range of conditions. Method A total of 222 British Pakistani participants: 117 parents of

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Is advice incompatible with autonomous informed choice? Womens perceptions of advice in the context of antenatal screening: a qualitative study

Authors: Shenaz Ahmed PhD,* Louise D. Bryant PhD,* Zahra Tizro PhD and Darren Shickle MD* Abstract Background Patient autonomy in antenatal screening is a high priority for policy developers in many countries. Objective This paper presents womens understandings of how health professionals should facilitate informed screening choices with an emphasis

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Decisions About Testing and Termination of Pregnancy for Different Fetal Conditions: A Qualitative Study of European White and Pakistani Mothers of Affected Children

Authors: Shenaz Ahmed & Jenny Hewison & Josephine M. Green & Howard S. Cuckle & Janet Hirst & Jim G. Thornton Abstract The aim of this study is to explore reasons for and against prenatal testing and termination for a range of conditions in women from two different ethnic backgrounds.

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To What Extent do Faith and Religious Identity Decision-Making and Ante-Natal Screening for Sickle Cell and Thalassaemia

Authors: Karl Atkin, Shenaz Ahmed, Jenny Hewison and Josephine M. Green Abstract: When making decisions about prenatal diagnosis, couples not only draw on their understanding of the condition but also broader aspects of their cultural identity. This article looks at how faith and religion mediate attitudes towards screening, prenatal diagnosis

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‘Balance’ is in the eye of the beholder: providing information to support informed choices in antenatal screening via Antenatal Screening Web Resource

Authors: Shenaz Ahmed BSc (Hons) PhD,* Louise Bryant BSc (Hons) PhD and Jenny Hewison BSc (Hons) PhD Abstract Objectives The Antenatal Screening Web Resource (AnSWeR) was designed to support informed prenatal testing choices by providing balanced information about disability, based on the testimonies of disabled people and their families. We

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