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Informed choice in genetic screening for thalassaemia during pregnancy: audit from a national confidential inquiry

Authors: Darlison, Mary Petrou, John Old, Mark Layton and Lysandros Varnavides Bernadette Modell, Rodney Harris, Beverley Lane, Maren Khan, Matthew Abstract Objective National audit of informed choice in antenatal screening for thalassaemia. Design Audit from the UK Confidential Enquiry into Counselling for Genetic Disorders. Setting Thalassaemia module of the UK

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Midwives’ perceptions of their role as facilitators of informed choice in antenatal screening

Authors: Shenaz Ahmed,BSc(Hons),PhD(Lecturer)a,n, LouiseD.Bryant,BSc(Hons),PhD(Lecturer)a, Phyllis Cole,RN,RM,DPSM(PublicHealthLeadforMaternity) A b s t r a c t Objective: to explore midwives’perceptions oft heir role as facilitators of informed choice in antenatal screening. Design: qualitative. Setting: community midwives,Yorkshire and Humberregion,UK. Participants: community midwives offering antenatals creening(n¼15). Method: semi-structured interviews analysed using Thematic Analysis. Findings:

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Attitudes towards prenatal testing and termination of pregnancy in British Pakistani parents and relatives of children with recessive conditions in the UK

Authors: S. Ahmed1*, M. Ahmed2, S. M. Sharif2, E. Sheridan2 and G. R. Taylor3 ABSTRACT Objective To compare British Pakistani parents’ and their relatives’ attitudes to prenatal testing (PND) and termination of pregnancy (TOP) for a range of conditions. Method A total of 222 British Pakistani participants: 117 parents of

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Is advice incompatible with autonomous informed choice? Womens perceptions of advice in the context of antenatal screening: a qualitative study

Authors: Shenaz Ahmed PhD,* Louise D. Bryant PhD,* Zahra Tizro PhD and Darren Shickle MD* Abstract Background Patient autonomy in antenatal screening is a high priority for policy developers in many countries. Objective This paper presents womens understandings of how health professionals should facilitate informed screening choices with an emphasis

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Decisions About Testing and Termination of Pregnancy for Different Fetal Conditions: A Qualitative Study of European White and Pakistani Mothers of Affected Children

Authors: Shenaz Ahmed & Jenny Hewison & Josephine M. Green & Howard S. Cuckle & Janet Hirst & Jim G. Thornton Abstract The aim of this study is to explore reasons for and against prenatal testing and termination for a range of conditions in women from two different ethnic backgrounds.

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