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7th National Thalassaemia Conference & Workshops April 23-24, 2011

Thalassaemia Federation of Pakistan in collaboration with Fatima Jinnah Medical College, Lahore organized the 7th National Thalassaemia Conference & workshops at Lahore from April 23-24, 2011. A large number of participants attended the conference, which included Thalassaemics, parents, doctors, paramedical […]

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6th National Thalassaemia Conference& Workshops

6th National Thalassaemia Conference& Workshops 17-19 Dec 2009

Thalassaemia Federation of Pakistan in collaboration with World Health Organization organized the 6th National Thalassaemia Conference & workshops at Lahore from Dec 17-19, 2009. The conference highlighted the importance of early diagnosis, optimal […]

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ISLAM AND TERMINATION OF PREGNANCY FOR GENETIC CONDITIONS IN PAKISTAN: IMPLICATIONS FOR PAKISTANI HEALTH CARE PROVIDERS

Authors: H. Jafri1, S. Ahmed2*, M. Ahmed3, J. Hewison2, Y. Raashid1 and E. Sheridan3
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INFORMED CHOICE IN GENETIC SCREENING FOR THALASSAEMIA DURING PREGNANCY: AUDIT FROM A NATIONAL CONFIDENTIAL INQUIRY

Authors: Darlison, Mary Petrou, John Old, Mark Layton and Lysandros Varnavides
Bernadette Modell, Rodney Harris, Beverley Lane, Maren Khan, Matthew
Abstract
Objective National audit of informed choice in antenatal screening for thalassaemia.
Design Audit from the UK Confidential Enquiry into Counselling for Genetic Disorders.
Setting Thalassaemia module of the UK Confidential Enquiry […]

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IMPROVED SURVIVAL OF THALASSAEMIA MAJOR IN THE UK AND RELATION TO T2* CARDIOVASCULAR MAGNETIC RESONANCE

Authors: Bernadette Modell*1, Maren Khan1, Matthew Darlison1, Mark A Westwood2,David Ingram1 and Dudley J Pennell2
Abstract
Background: The UK Thalassaemia Register records births, deaths and selected clinical data of
patients with thalassaemia who are resident in the UK. A study of survival and causes of death […]

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MIDWIVES’ PERCEPTIONS OF THEIR ROLE AS FACILITATORS OF INFORMED CHOICE IN ANTENATAL SCREENING

Authors: Shenaz Ahmed,BSc(Hons),PhD(Lecturer)a,n, LouiseD.Bryant,BSc(Hons),PhD(Lecturer)a,
Phyllis Cole,RN,RM,DPSM(PublicHealthLeadforMaternity)
A b s t r a c t
Objective: to explore midwives’perceptions oft heir role as facilitators of informed choice in antenatal
screening.
Design: qualitative.
Setting: community midwives,Yorkshire and Humberregion,UK.
Participants: community midwives offering antenatals creening(n¼15).
Method: semi-structured interviews analysed using Thematic Analysis.
Findings: to facilitate informed […]

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